Log in »

Alglucosidase alfa (al gloo KOSE i dase AL fa)

Pediatric Medication

Brand Names: U.S.

Lumizyme; Myozyme

Brand Names: Canada

Myozyme®

Warning

  • Unsafe allergic effects may happen. Tell your child’s doctor about any fever, rash, flushing, itching, flu-like signs, or trouble breathing that your child might have during infusion and for 3 hours after it is done. Your child may be given drugs to avoid some of these signs.
  • Tell your child’s doctor if your child has heart or lung disease. He/she may be more sensitive to this drug.
  • You may get this drug only from the Lumizyme ACE Program®.

What is this drug used for?

  • It is used to treat Pompe disease.

Is it safe for my child to take this drug?

  • Not if your child has an allergy to alglucosidase alfa or any other part of this drug.
  • Be sure to let the doctor know if your child has any allergies or side effects to drugs, foods, or dyes. Make sure to tell about the allergy and what signs your child had. This includes telling about rash; hives; itching; shortness of breath; wheezing; cough; swelling of face, lips, tongue, or throat; or any other signs.

What are some things I need to know or do while my child takes this drug?

  • Check all drugs your child is taking with your child’s doctor. This drug may not mix well with some other drugs.
  • Keep a list of all your child’s drugs (prescription, natural products, vitamins, OTC) with you. Give this list to your child’s doctor.

What are some side effects that I need to call my child’s doctor about right away?

  • If any of this news causes you to be worried, any of the unwanted side effects happen, or if your child is not better after taking this drug.
  • If your child shows signs of a very bad reaction, call your child’s doctor or the ER right away. These include wheezing; chest tightness; fever; itching; bad cough; blue skin color; seizures; swelling of face, lips, tongue, or throat; or if your child is not acting normal.
  • If your child has a fast heartbeat.
  • If your child has trouble breathing.
  • If your child gets a rash.
  • If your child’s health problem does not get better or if you think your child’s health problem is worse.

What are some other side effects of this drug?

  • Anemia.
  • Short-term pain after use.
  • Fever, chills, itching, hives, chest pain or pressure, or shortness of breath when drug is given. Other drugs may be given to avoid these.
  • Flushing. Dressing your child in layers of clothes or summer clothes and providing a cool place may help.
  • Rash.
  • Slow heartbeat.
  • A fast heartbeat.
  • Upset stomach or throwing up. Many small meals and good mouth care may help. Older children may suck hard, sugar-free candy.
  • Loose stools (diarrhea).
  • Cough.

How is this drug best given?

Give this drug as ordered by your child’s doctor. Read and follow the dosing on the label closely.
  • It is given as a shot into a vein over a period of time.
  • Diphenhydramine and acetaminophen may be given before this drug to lower itching and fever.

General drug facts

  • If your child’s symptoms or health problems do not get better or if they become worse, call your child’s doctor.
  • Do not share your child’s drug with others and do not give anyone else’s drug to your child.
  • Keep a list of all your child’s drugs (prescription, natural products, vitamins, OTC) with you. Give this list to your child’s doctor.
  • Talk with your child’s doctor before giving your child any new drug, including prescription or OTC, natural products, or vitamins.
  • Some drugs may have another patient information leaflet. If you have any questions about this drug, please talk with your child’s doctor, pharmacist, or other health care provider.

Consumer Information Use and Disclaimer

This information should not be used to decide whether or not to take this medicine or any other medicine. Only the healthcare provider has the knowledge and training to decide which medicines are right for a specific patient. This information does not endorse any medicine as safe, effective, or approved for treating any patient or health condition. This is only a brief summary of general information about this medicine. It does NOT include all information about the possible uses, directions, warnings, precautions, interactions, adverse effects, or risks that may apply to this medicine. This information is not specific medical advice and does not replace information you receive from the healthcare provider. You must talk with the healthcare provider for complete information about the risks and benefits of using this medicine.

Copyright

All content copyright © 1978-2014 Lexi-Comp Inc. or its respective owners. All Rights Reserved.