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Memorial Sloan-Kettering Cancer Center Pancreatic Tumor Registry
[Protocol 02-102]
- Full Title :
- MEMORIAL SLOAN-KETTERING CANCER CENTER PANCREATIC CANCER FAMILY REGISTRY
- Purpose :
There are both environmental and inherited risk factors that lead to the development of pancreatic cancer that have not yet been identified. In order to help define these risk factors, investigators at Memorial Sloan-Kettering Cancer Center have developed a Familial Pancreatic Cancer Registry that is focused both on patients with pancreatic cancer and on individuals with a strong family history of this disease.
The purpose of the registry is fourfold:
- To develop a registry of individuals at high risk for pancreatic cancer.
- To study lifestyle and other exposures that may be related to the development of pancreatic cancer.
- To find out whether it is feasible to follow people with an increased risk of pancreatic cancer, and by examining them at regular intervals (using specialized imaging techniques) to see if they develop pancreatic cancer or precancerous pancreatic lesions at an early stage.
- To collect specimens from patients with pancreatic cancer and their family members to identify genetic risk factors for this disease.
- Eligibility :
To be eligible for this study, patients must meet several criteria, including but not limited to the following:
- Patients with pancreatic cancer may participate in the study if they have one or more first-degree relatives with pancreatic cancer; have two or more second-degree relatives with pancreatic cancer; or have a BRCA1 or BRCA2 mutation. When investigators identify patients who are eligible for the family study, they will ask for permission to contact their relatives for the surveillance part of the study.
- Persons without pancreatic cancer are eligible for the surveillance portion of the study if they have two or more relatives, including at least one first-degree relative, with pancreatic cancer; have 3 or more second-degree relatives with pancreatic cancer; or have a BRCA1 or BRCA2 mutation and any first- or second-degree relative with pancreatic cancer.
For more information and to see if you are eligible for this study, please use our online form to tell us something about your family's history with pancreatic cancer. Once we receive the form, we will contact you regarding your participation in the study.
If you would prefer to talk to someone, please contact Dr. Robert C. Kurtz, Principal Investigator, at 212-639-7620, or a member of our study team at 646-735-8194. You can also contact us by e-mail at FPCregistry@mskcc.org.
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