Here you will find information about brain tumors, treatment options, and living with a brain tumor. "Tumor & Treatment Info" includes helpful information about specific types of tumors, risk factors, symptoms, diagnosis, and treatment. In the "Care & Support" section, you will find many good resources regarding care options, caregiver stress management, cognitive retraining, managing fatigue, speech pathology services, and other rehabilitation information, such as therapeutic recreation services. You can also find a variety of internet resources, and register to receive periodic e-updates, to help keep you informed. In the "Health Care Professionals" section, you may place quantity orders for ABTA patient educations materials, find links to professional journals and announcements, and search for clinical trials.
MedlinePlus, a Web site of the National Library of Medicine and National Institutes of Health, provides links to a compilation of noteworthy brain cancer resources on the Web. Here, information is organized by subject -- Overviews, Diagnosis/Symptoms, Treatment, Prevention/Screening, Rehabilitation, Clinical Trials, and Research. -- and within each subject you will find links to other Web resources, with the source of that information in parentheses next to the link. In the News section of the site, you can choose to view health news by topic, and find links to articles on brain cancer that have been written in the past 90 days. If you scroll to the end of each article, you will find links to related topics.
In the multimedia section, you will find several "OR-Live" videos that show actual brain tumor operations, such as stereotactic radiosurgery, craniotomy treatment, gamma knife procedures, minimally invasive surgery, and more.
This online tutorial provides information about brain tumors in a slideshow format with narration -- a great tool for those newly diagnosed with the disease. The tutorial includes an overview of the brain, brain tumor symptoms, diagnosis, and treatment options. You can repeat any page without having to start from the beginning. To view the tutorial, you will need Flash Player, which you can download free of charge.
Here you will find comprehensive information from the National Cancer Institute about primary and secondary brain tumors, both for adult and pediatric patients, including symptoms, diagnosis, and treatment options. You can find treatment options by type of brain tumor and see the results of noteworthy brain tumor clinical trials. Information is presented in formats for patients and for health professionals, in English and in Spanish. You can also search to find clinical trials enrolling patients with brain tumors.
For a good overview, see the online booklet What You Need To Know About Brain Tumors which you can page through to learn about brain tumor symptoms, diagnosis, treatment, and questions to ask the doctor. Words that may be unfamiliar appear in italics. The NCI Dictionary explains these terms.
Resources about brain tumors for patients, survivors, family, friends, and professionals from a national organization dedicated to research, education, and support. Information ranges from diagnosis and tumor types, to treatment and support.
In the Support section, there are message boards, young adult-specific resources, as well as a robust section for caregivers, including caregiving training events, tips, and a link library.
Good starting points for the newly diagnosed are the Brain Tumor FAQ, the glossary of brain tumor terms, and the free-for-download publications and fact sheets, several of which are available in Spanish.
This site offers information about brain tumors, including how they are diagnosed and treated. Newly diagnosed patients and their loved ones can find support from others who are living with brain tumors through the Foundation's Patient and Caregiver Support Networks. These two online networks list patients and caregivers by tumor type and age, and each entry includes the contact's first name, information about the treatment they have received, and other relevant information. (This information is provided by patients and their caregivers.) You can send them a message through the Web site and, by supplying your e-mail address, you can receive replies. The site also lists local support groups by zip code and state, and offers message boards so brain tumor patients, survivors, family members, and caregivers can exchange ideas about treatment and offer emotional support, however you must register with the site first to use them.
