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Psychosocial Services
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Dr. Jimmie Holland
Dr. Holland discusses the IOM report, "Cancer Care for the Whole Patient." Runtime: 1 minute 30 seconds.

A diagnosis of cancer can be overwhelming. Ordinary concerns are often put on hold while important decisions are made and treatments begun -- treatments that can have a debilitating effect on an individual's mental and emotional health. What too frequently is overlooked during this chaotic time, both by patients and their doctors, is that quality cancer care must treat the cancer and address the patient's general well-being. A recent report by the Institute of Medicine proposes a new standard of care that integrates psychological and social support into routine care for people with cancer.

The Mental and Emotional Side Effects of Cancer

The psychological and social concerns of cancer patients include everything from an ongoing need for information about therapies and their resulting side effects to depression, stress, and the other mental and emotional conditions that can develop as a result of the traumatic upheavals associated with cancer treatment. These individuals may require assistance with daily activities that they can no longer perform independently, as well as with transportation, prosthetics, and medications to which they may not have easy access.

The Institute of Medicine's (IOM) report, entitled "Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs," recommends that all cancer care providers screen every cancer patient at their initial visit for signs of distress, then connect patients in need with health care providers who can treat this distress, periodically reevaluating patients to determine if any changes in care are required. Sponsored by the National Academy of Sciences, of which the Institute of Medicine is a part, the report was based on the findings of a committee of experts, including Jimmie C. Holland, who holds the Wayne E. Chapman Chair in Psychiatric Oncology at Memorial Sloan-Kettering.

"This report represents the first time that an organization which recommends health policy has recommended that the standard of care for cancer patients must include psychosocial care," Dr. Holland says. "This is important because, to date, most hospitals and clinics have equated cancer care with therapies used to treat cancer, excluding the mental and emotional needs of the patient being treated. This report provides a new level of credibility to this area since it confirms that there is strong evidence from the literature that psychosocial interventions are effective to help patients adhere to their treatments and reduce their distress."

Lost in Outpatient Care

This is a particular problem now that the majority of cancer treatment is delivered in an outpatient clinic. In this setting, many people are treated with short visits, during which there is little time for anything beyond the treatments being delivered. Cancer care providers are not in any regular, systematic way identifying the psychological and social needs of these patients, nor are they helping them to find and use available resources. Added to this is what Dr. Holland refers to as the "don't ask, don't tell" phenomenon, in which patients are reluctant to mention their emotional distress for fear of seeming weak, or of displeasing or bothering their doctors. Doctors, for their part, Dr. Holland says, often are busy and do not ask patients about any issues not directly related to treatment.

"This report represents the first time that an organization which recommends health policy has recommended that the standard of care for cancer patients must include psychosocial care."
-- Jimmie C. Holland, Wayne E. Chapman Chair in Psychiatric Oncology

Seeking to address these problems, the report offers practical guidance to cancer care providers, showing them how they can design their practices to better address these needs of their patients.

Distress Thermometer

"For example," Dr. Holland explains, "we can provide what is known as a Distress Thermometer to patients in the waiting room." The Distress Thermometer is based on the pain management model used at some comprehensive cancer centers like Memorial Sloan-Kettering. In the model, patients are asked if they have pain and if so are asked to assess the intensity of the pain on a scale of 0 to 10. With the distress model, patients are routinely asked to rate their distress 0 to 10, either with a pencil and paper model in the waiting room or on a touch screen. If the response is 4 or higher, the oncology nurse or social worker should explore the cause of their distress and then, if necessary, refer patients to the appropriate psychosocial resource.

Dr. Holland and her fellow committee members point out that many of the services and resources required by cancer patients in distress already exist, and are offered free of charge or are reimbursable through health insurance providers.

"What this report hopefully will mean is that both patients and healthcare professionals will now know that psychosocial support is a standard part of routine cancer care," Dr. Holland suggests. "This will add tremendously to the overall quality of care."

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