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There are many secondary issues that may concern patients. Whether it is continued worry about the possibility that the cancer will return, or a change in physical health or psychological and social well-being, most cancer patients face some level of emotional or physical challenge both during and at the end of treatment.

Your Emotions

A diagnosis of cancer is never an easy thing to face. While people handle such an event in their own way, many find that building a support network can be a great help. A support network gives you a place to talk about your fears, concerns, and the decisions you need to make.

You may have one close friend or family member who can serve as your sounding board. Or you may want to reach out beyond your loved ones, and talk with other women who have dealt with some of these issues in their own lives. Ask your doctor, nurse, or social worker for referral for professional counseling or to a local support group, or call local or national organizations for referrals. Ask your health care team members for recommendations on web sites to access for online information. And don't be afraid to seek professional counseling.

Your partner, your children, and other family members may need some emotional help too. Explore support groups or counseling for them as well.

Friends & Family

Your friends, family, and co-workers naturally will be concerned about you as you progress through your treatment. Many will want to help in any way they can. Here are a few tips for managing these relationships at such a stressful time.

  • Ask one person to be your primary caregiver and advocate. This often is a spouse, but it can also be a sibling, parent, or friend. It can be very helpful to have one person who goes with you to appointments, keeps track of treatments, and can talk to doctors on your behalf, if you so choose. Discuss this role with the person and find out what makes both of you comfortable. How much input do you want? How much is the other person comfortable with?
  • The people who care about you will want to know how you are doing. But don't feel obligated to answer the phone every time it rings. Take care of yourself. If you are not up to talking on the phone or having visitors, appoint one family member chief information officer. Leave a message on your answering machine explaining that you are very happy to hear everyone's good wishes and you will contact them just as soon as you are feeling better. Make use of e-mail. Remember, it's up to you how much you want people to know about your medical condition.
  • Accept help from people. Allow people to assist with tasks such as cooking meals, mowing the lawn, shopping, cleaning your home. It might help you both to feel better.

Sexuality

Sexuality encompasses many aspects of our lives, including our self-image, our relationships with partners, our perceived attractiveness, our ability to experience sensual feelings, and our reproductive capacity.

Treatment for breast cancer can affect your sexuality both physically and emotionally. The diagnosis and the effects of treatment may cause depression, which in turn may affect your sense of self, desirability, and sexuality. Share your feelings of sadness or depression with health team members. They can assess your symptoms and direct you to appropriate resources for help in dealing with these normal feelings.

Chemotherapy treatments can cause temporary or permanent changes in your ovaries, which produce hormones. Changes in those hormone levels can cause premature menopause, hot flashes, vaginal dryness and other problems. Some drugs can irritate the lining of the vagina and reduce the size of the vagina, making intercourse painful. Other side effects of treatment, such as nausea, may lower your desire for sexual intimacy. Radiation therapy does not cause hormonal disruptions, but it can leave your skin somewhat swollen and tender. It can also cause fatigue. You may find also that your particular likes and needs change during and after cancer treatment.

Losing a breast can deeply affect your feelings about your sexuality. Breasts provide an important source of sexual pleasure as well as a sense of femininity and desirability.

With all of these possible changes occurring, it is quite likely that your sexual relationship with your partner will change. Give yourself and your partner time to adjust. Explore new ways to share intimacy, or just focus on cuddling and feeling close for now. If you feel shy or awkward about the changes in your body, consider wearing a flattering negligee. If vaginal dryness is a problem, ask your doctor or pharmacist about lubricants such as Replens®, Astroglide®, or K-Y® jelly. Many women find that reconstructed breasts help them to feel more attractive. Many women, too, soon find that the loss of a breast is not at all important to their partners.

Don't be afraid to ask for help. Talk to your doctor or nurse about the potential side effects of your treatment. If he or she is not familiar with this issue, ask for a referral to a specially-trained nurse or a program at a medical center.

Maintaining emotional intimacy and communication with your partner is the best way to dispel misconceptions about cancer and maintain a satisfying sexual relationship. Share your thoughts and ask your partner to do the same. If you need assistance communicating with your partner about issues of sexuality or fertility, healthcare providers are available to provide information, support, and practical advice.

If you are not currently in a serious relationship, think about when you want to tell dates about your experience with cancer. It's not something that every date needs to know right away, but it's not something that you need to hide either. It's up to you when you want to bring up the subject. One cancer survivor chooses to discuss her treatment during the second or third date. It's a big part of her life, she says, and ignoring it only delays the "getting to know you" process.

Psychological Effects

Your first reaction to completing treatment may be joy, but it may be tempered by uncertainty, grief, sadness, or anger. Many cancer survivors report some level of distress following treatment, particularly if their physical side effects are life-altering, they have had other stressful life events, or they have had difficulties coping with stressful events in the past. Uncertainty about relationships can be another source of concern. While family support can be critical in helping to address these emotions, survivors may worry about further imposing on already burdened family and friends. Cancer survivors often seek psychological and educational support through community agencies or healthcare professionals who specialize in cancer and survivor issues. See Resources for listings of organizations that might help.

Anxiety & Depression

Anxiety and depression are not unusual in cancer survivors. Your doctors and nurses can provide you with a better understanding of the emotional changes you may experience after treatment ends. Psychiatrists, psychologists, and social workers can be very helpful with problems such as depression, panic attacks, feelings of isolation, and other feelings that concern you. Joining support groups, talking with family members, friends, and other cancer survivors, and listening to music or relaxation tapes may help.

Body Image Concerns

The cancer experience may have an impact on your self-esteem and your body image. While in some cases there have been major changes in your body and its functioning, other physical changes, such as hair loss, sallow skin tone, and weight loss or gain can leave you feeling like your "old self" is gone. These feelings are natural; you will probably feel much better in the coming months, as your health, appetite, and energy return to normal.

Family Disruption

Cancer often disrupts normal family relationships and responsibilities. Traditional roles may be reversed or additional roles taken on, causing stress for everyone. Returning to old roles and routines may take time. Open communication and a sense of humor help. As with other cancer-related difficulties, many professionals can help families work through these problems.

Transition

For many patients, months or years of treatment have conditioned them to a "sick role." They may have felt ill and unable to carry on their usual activities. Now, at the end of treatment, they begin to feel better and can slowly resume normal activities. But leaving the "sick role" behind may take more than simply feeling better. Patterns develop, new behaviors take root, and anxiety and fear remain. The transition to the "well role" may take time.

Vulnerability

Almost everyone feels a heightened sense of uncertainty and vulnerability after cancer. But many patients say the experience makes them appreciate all the little things they never had time for before. After cancer, they "stop to smell the roses."

Isolation

The cancer experience causes some patients to feel isolated or to withdraw from social interactions. Sometimes, social supports disappear or are unable to provide the kind of help a patient needs or wants. Sometimes, patients refuse support. Turn to your healthcare professionals for advice.


Last Updated: Apr. 14, 2003
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