Virtual Programs Provides Patients with Online Cancer Support and Education

By Julie Grisham

on Friday, April 12, 2013


Memorial Sloan Kettering’s Virtual Programs offers patients private, online support and education sessions to participate in from home or work.

Sharing concerns with a support group can be a beneficial way for people with cancer as well as their caregivers to cope with physical and emotional concerns that arise during and after diagnosis and treatment. But attending meetings can be difficult, especially for those who are dealing with a serious illness, live far from Memorial Sloan Kettering, or are busy juggling the demands of work and family life.

This was the motivation behind the creation of Memorial Sloan Kettering’s Virtual Programs. Launched in 2010, the program now offers a number of real-time, moderated, online support and education groups for people with cancer and their families. The programs are confidential and cost free. Several are also now available to people being treated outside Memorial Sloan Kettering.

“It’s amazing to be able to bring people together, regardless of geographic location, to benefit from each other’s experiences and the expertise of professional staff,” says Rachel M. Schneider, Program Manager of the Virtual Programs. Ms. Schneider, who is also the creator of Virtual Programs, was working as a social worker when she realized that many people who would like to participate in support groups and educational programs were not able to, especially because of the difficulties they had getting to Memorial Sloan Kettering’s Upper East Side campus.

“When we started the program three years ago, people thought it was ahead of its time,” she explains. “No one else was doing live, moderated, interactive programs, which serve a very different function from things like message boards and chat rooms.”

To join a Virtual Program, participants log in to a secure webpage, which allows moderators and presenters to share written information and images. They then enter their telephone number and the system calls them back directly, so that they are able to speak with each other and the moderator over the phone.

All of the groups are moderated by Memorial Sloan Kettering professionals, including social workers, nurses, genetic counselors, and physicians. Moderators may present educational information and help lead discussions. The groups generally last between an hour and 90 minutes, and they are offered at various times throughout the day.

Focus on Confidentiality

Patient confidentiality and privacy are important components of the program. At the start of each session, participants are reminded that they should be in a private area and keep anything they hear from other participants confidential. They are also encouraged to use only their first names and last initial when identifying themselves.

“Most people really appreciate that these groups are anonymous, and they say that they are able to share things that they might not otherwise share,” Ms. Schneider says.

“Overall, people say these groups help meet a need that hasn’t been met in other ways,” she concludes. “Those who participate describe a reduction in social isolation. The potential impact of connecting with people who are in the same boat is phenomenal.”

Find more information about upcoming Virtual Programs.

For another form of support, our Connections online community is also available to Memorial Sloan Kettering patients, caregivers, survivors, and friends.

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Am I eligable to join? I was operated on 3/13/07 by Dr. Murray F. Brennan, Whipple procedure for IPMN's, and all 14 tumors were precancerous. However, now they have come back into the pancreas ducts and I have four IPMNs now. The question: When do they turn to cancer, and what can be done before they do this? I am being monitored yearly, but is that enough? Thank you for any help and education you can give me with this very serious problem.

My boy friend was just diagnois with rectal cancer..We are still in shock--the Dr says that he has to have an operation to remove the large mass and then have chemo afterwards ....What should we do what kind of questions should we ask and what can we expect?? can you recommend a great cancer hospital..We live in Norfolk Va

dysplastic melanoma in situ - why can't I be treated @ MSKCC?

I was suppose to receve an web link and instructions on how to attend
but I never did
What can I do

We are looking into this and will respond to you at the email address that you provided. Thanks for your comment.

Thank You!

I would like to join your group. My husband of 30 years was diagnosised with pancreatic cancer he lived 11 months he had passed away in July .I feel all alone and need some kind of support to help me deal.I thought I can do it alone but no I can't. I am also a MSK patient.I have been diagnosed with breast cancer also.If you can help in any way please let me know.Thank You

Melinda, we're very sorry for your loss. You can find out about our Virtual Groups programs here:…. You may also be interested in Connections, which is an online community and support group for patients and caregivers. You can learn more about it, including finding instructions on how to register, here:… Thank you for your comment.

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