Full TitleHereditary Colorectal Cancer Family Registry
The purpose of this study is to establish a registry of families who are affected with various forms of hereditary colorectal cancer. This registry will help researchers learn more about the genetic causes of colorectal cancer and aid in the development of new ways to prevent, diagnose, and treat colon and rectal cancers. Participation in the Hereditary Colorectal Cancer Family Registry can be educational for families by helping them learn more about their colorectal cancer risk. For patients already diagnosed with a hereditary colon cancer, the registry will help to keep them abreast of new research that may affect their medical care.
Study participants will complete one questionnaire about their medical history and another about their family history of cancer. Participants may be contacted periodically in the next several years so researchers can follow-up on their health status.
To be eligible for this study, patients must meet several criteria, including but not limited to the following:
- Patients must have a clinical diagnosis of a hereditary form of colorectal cancer, such as familial adenomatous polyposis (FAP) or hereditary nonpolyposis colon cancer (HNPCC), or early-onset colorectal cancer (diagnosed in patients age 40 or younger), or other polyposis syndromes.
- Family members of patients with hereditary colorectal cancer are also eligible regardless of whether they themselves have been diagnosed with hereditary colorectal cancer.