Development of a Screening Tool to Identify Family Members in Need of Support During Palliative Care and Bereavement

Full Title

Identifying Family Members in Need of Support During Palliative Care and Bereavement

Purpose

Support services are available for families of people with cancer who are receiving palliative care and family members who have lost loves ones to cancer. Providers of these services, such as psychosocial support specialists and other healthcare providers, would like to have a brief, easy tool to identify family members in need of support, so they can better tailor services for each person. The goal of this study is to develop a screening tool for family members in need of emotional support.

During a single visit, participants will first be surveyed about their psychosocial history and their experience with their loved one's disease. Then they will be interviewed about how they felt about the survey. Researchers will use the results of the survey and interviews to refine the screening tool.

Eligibility

This study will include partners, spouses, children, and parents with family members who are either receiving palliative care for cancer or who recently (within two to six months of the study) died of cancer. Participants must be age 21 or older and understand English.

For more information about this study, please contact Dr. Wendy Lichtenthal at 646-888-4812.

Protocol

15-095

Disease Status

Newly Diagnosed & Relapsed/Refractory

Investigator

Locations