Lymphedema therapist Jeannette Zucker shares ways to cope with lymphedema, from diet and exercise to skin care and travel tips.
Lymphedema is swelling in the arm or hand and sometimes in the breast or chest wall that can be very uncomfortable.
It can occur when some or all of the axillary (underarm) lymph nodes are removed as part of treatment for breast cancer. It can also happen after the axillary lymph nodes have received radiation. In both instances, the lymphatic fluid that’s normally filtered from the tissue collects and causes swelling.
Signs of lymphedema include:
- visible swelling in the arm, hand, breast, or chest wall
- a sensation of heaviness, achiness, or tightness in the arm
- easy fatigue of the arm
- pain in the arm
If you’re experiencing lymphedema after breast cancer surgery or radiation therapy, the experts at Memorial Sloan Kettering recommend prompt treatment. For many women, lymphedema therapy can be extremely helpful. It’s important to note that there is no known cure for lymphedema at this time. However, the approaches described here may help ease symptoms. MSK’s researchers are actively seeking out ways to both prevent and cure this painful condition.
MSK physicians, nurses and other healthcare professionals are experts in breast cancer surgery, reconstruction, radiation oncology and more.
The first step to getting help is making an appointment with an expert trained in lymphedema therapy. Also known as complete decongestive therapy (CDT), it brings together three major therapies — massage, compression, and exercise. It also involves self-care related to skin health, eating well, and other recommendations you can practice at home.
If CDT is not effective, there are other options you may want to consider. Some women choose to have a new, innovative surgery called lymph node transplant designed to improve lymphatic circulation and decrease symptoms. Others may wish to consider pain management approaches.
Here you can find in-depth information on the individual therapies used to help women with lymphedema related to breast cancer.
A compression sleeve is a tight-fitting elastic garment that can be worn on the arm or hand to help drain the lymphatic fluid from your arm. It is one of the garments your lymphedema therapist may recommend as part of complete decongestive therapy. Other types of compression garments include:
- a fingerless glove or a gauntlet (which does not have individual finger openings), often worn with a sleeve
- a support bra for the chest area or a vest for the entire trunk area
Some women may also wear special compression bandages.
It’s important to wear compression garments when you are participating in sports or going on an airplane. Your lymphedema therapist can help you choose the type of compression garment that’s right for you. Certain types of garments may require a custom fitting.
Lymphedema exercises are another key component of complete decongestive therapy. The purpose of exercises for lymphedema is to reduce the volume of lymphatic fluid in the arm or other affected area. Generally, these are light exercises that can help you with your daily activities, such as dressing, carrying packages, or doing household chores.
Most women start out with a series of simple stretches designed to mobilize muscles, joints, and scar tissue. Your lymphedema therapist can show you which exercises would most benefit you. It’s important to increase the intensity of the exercise slowly so that your arm muscles have time to adjust.
Manual lymph drainage is a specialized type of massage. Gentle massage techniques help direct excess lymph fluid away from affected body areas toward regions that can support drainage.
Women at risk of lymphedema or with early symptoms of heaviness or discomfort experience benefits such as reduced pain and discomfort, relaxation, and stimulation of the lymphatic system.
There are many other types of massage, including myofascial release and lympho-fascial release, that can help ease the symptoms of lymphedema. We recommend speaking with your lymphedema therapist to find out which approaches might be best for you.
If you have lymphedema associated with lymph node removal, you may be a candidate for lymph node transplant. The procedure involves taking healthy lymph nodes from one part of the body (called the donor site) and moving them to the area under the arm. At MSK, we offer lymphedema surgery that incorporates a new approach pioneered by MSK plastic surgeons called reverse lymphatic mapping. It allows your surgeon to identify which lymph nodes are appropriate for removal and to remove only those nodes, reducing the risk of lymphedema at the donor site.
Neurostimulation involves stimulating the nervous system or giving medications that directly affect the nervous system to relieve pain.
MSK’s experts offer several of these pain management approaches, including stellate ganglion block and thoracic sympathetic block. These are types of nerve blocks. In these procedures, an anesthesiologist gives injections with local anesthetic and occasionally steroids to the nerves that provide feeling to a certain part of the body.
Which type of nerve block may help you depends on where you’re experiencing the pain. A stellate ganglion block affects nerves that go to the arms, whereas a thoracic block affects nerves that go into the chest wall, breast area, and armpit. Usually more than one injection is required.
For shoulder pain brought on by lymphedema, we can offer a nerve block as well as transcutaneous electrical nerve stimulation.
For longer-term pain control, intrathecal drug delivery or spinal cord stimulation may be good options.
Sometimes an injury, infection, burn, or other trauma to the arm triggers lymphedema. Studies have also shown that gaining weight after breast cancer treatment can strain the lymphatic system. Many studies indicate that the risk for developing lymphedema varies based on how the lymph nodes are taken out.
It’s difficult to determine the risk of developing lymphedema because there’s no standard test for diagnosing it. Disruption of lymph flow affects people differently, and lymphedema can develop soon after surgery or years later.
We don’t know whether specific activities increase the risk of developing lymphedema after treatment for breast cancer. But there are some general guidelines you can follow to reduce the chance of getting an infection that might lead to the condition:
- Avoid cuts or breaks in the skin that can lead to infection on the affected arm. If you do get a cut, clean the area well and apply antibacterial ointment and a bandage. Watch the area for signs of infection until it heals.
- Use a moisturizer daily to help protect the skin of your arm and hand.
- Manicure your nails carefully. Don’t cut the cuticles.
- Wear gloves when gardening, cleaning, or washing dishes.
- Use care when removing the hair under your arm. Do not use a straight razor or hair removal cream, as they can cause skin breaks.
- Use insect repellent to avoid stings.
- Avoid tight jewelry, clothing, or anything that can cause a tourniquet effect (such as that caused by blood drawing or the taking of blood pressures) on the affected arm. If both arms are involved, ask your doctor how to proceed.
- Take care not to get sunburned. Use sunscreen with an SPF of at least 30.
- Avoid using heating and hot packs on the affected arm and shoulder.
Finding Support for Lymphedema
MSK breast cancer patients receive care from a team of rehabilitation experts who specialize in lymphedema therapy. Appointments are available at the Sillerman Center for Rehabilitation, our state-of-the-art rehab center in Manhattan, as well as MSK Westchester and MSK Commack on Long Island.
We also offer lymphedema services that are open to all, regardless of where you received your breast cancer care. These include:
- Lymphedema therapy. Non-MSK patients who wish to receive lymphedema care at MSK can make an appointment to see one of our physiatrists (doctors who specialize in rehabilitation medicine) by calling 646-888-1900.
- Support groups. We offer support groups at our Evelyn H. Lauder Breast Center in Manhattan as well as at MSK Commack. These groups are free and open to anyone who has experienced cancer-related lymphedema. Call our social work department for details at 212-639-7020.
- Integrative medicine. Anyone is welcome to make an appointment for lymphedema massage at MSK’s Bendheim Center for Integrative Medicine in Manhattan.