Collecting Information about Treatment Results from Patients with Cushing's Syndrome

Full Title

IIT: Treatment Outcomes for Patients with Cushing’s Syndrome: A Prospective Data Collection Study

Purpose

Cushing’s syndrome occurs when the adrenal glands produce too much of the “stress hormone” known as cortisol. This can be caused by a tumor which develops in the pituitary gland and secretes a hormone called adrenocorticotropic hormone (ACTH). Cushing’s syndrome can also be caused by an ACTH-secreting tumor elsewhere in the body, or by a tumor in the adrenal glands that makes cortisol.

In this study, researchers want to learn about quality of life and other outcomes among patients receiving routine treatment for Cushing’s syndrome (such as surgery, radiation therapy, or medical therapy to lower cortisol levels). Participants will be asked to complete a series of questionnaires asking them about their medical history, general wellbeing, emotional wellbeing, and eating habits. Participants will also be asked to give a blood sample and undergo a bone density and body composition study, which is optional. The findings of this study will enable doctors to create a registry to study long-term outcomes among people with Cushing’s syndrome, which may improve the future care of people with this disease.

Who Can Join

This study is open to people with Cushing’s syndrome (due to a pituitary, ectopic, or adrenal tumor) who are age 14 and older.

For more information about this study and to inquire about eligibility, please contact Dr. Eliza Geer at 646-888-2627.