INSPIRE-AYA: An INteractive Survivorship Program to Improve Healthcare REsources for Adolescent and Young Adult Cancer Survivors

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Full Title

INSPIRE-AYA: A Multicenter INteractive Survivorship Program to Improve Healthcare REsources for Adolescent and Young Adult (AYA) Cancer Survivors (Fred Hutch IRB)

Purpose

In this study, researchers are assessing a new wellness tool for survivors of adolescent and young adult (AYA) cancers. The INSPIRE program is a mobile app or online tool, with options for social media and phone calls, designed to help survivors access information and support for their physical and emotional wellness. The INSPIRE program has specific tools for:

  • Health maintenance and monitoring (for survivors and their doctors)
  • Management of stress and worries and promotion of quality of life
  • Connection with other AYAs in private social media groups for those who desire  

Participants in this study will be randomly assigned to receive either:

  • Access to the INSPIRE program, or
  • Access to a special online site with links to resources for survivors, followed by access to the INSPIRE program after 12 months.

Eligibility

To be eligible for this study, patients must meet several criteria, including but not limited to the following:

  • Participants must be survivors of leukemia, lymphoma, colorectal cancer, melanoma, or sarcoma diagnosed between the ages of 15 and 39, with the diagnosis made 1 to 5 years before entering the study.
  • Treatment must have been completed at least 6 months before entering the study.
  • Participants must be proficient in English and have access to email and a smartphone mobile app or the internet.
  • Participants must now be age 18 or older.

For more information about this study and to inquire about eligibility, please contact Dr. Danielle Friedman at 212-639-7376.

Protocol

21-238

Phase

IV