This video explains what it means to be chosen as a caregiver for someone having a stem cell transplant or cellular therapy. It describes what’s expected and how you can get ready.
In this video we’ll explain what it means to be chosen as the caregiver for someone having a bone marrow transplant or having cellular therapy. We'll describe what's expected and how you can get ready.
You must have a caregiver plan to have a transplant or cellular therapy. There are no exceptions. If you don't have a caregiver, you cannot have your transplant or cell therapy.
Your caregiver must be available 24 hours a day, seven days a week. The length of time you'll need a caregiver depends on your treatment. Your care team will talk with you about what to expect.
A caregiver is an important part of your treatment. They help and support you in many ways. Your caregiver will help with medical tasks, like taking your temperature, bringing you to your appointments, helping you take your medicines the right way between your appointments, and calling for help in an emergency.
They also help with everyday tasks, like keeping your home clean and safe, cooking meals, and your daily needs.
It's important to choose the right caregiver during your treatment. Being a caregiver can be hard work. They need to understand what is expected before they agree to take on this role.
When you're out of the hospital, you'll need a caregiver. Your caregiver must be with you 24 hours a day, seven days a week, during your stem cell transplant or cell therapy.
The caregiver role can be challenging. Caregivers can feel tired, overwhelmed, and stressed. It can be stressful if your treatment plan changes, or you need an unplanned hospitalization or clinic visit.
Your care team is here to help you and your caregiver. We will ask you how you're feeling. You and your caregiver should let us know how you are doing.
There are rules about caregivers. They must be over age 18 and a responsible adult. They must agree to be your caregiver.
During your treatment, your caregiver must take you to and from your visits. They may not be able to work during this time. Your care team can help with paperwork for work leave.
It's okay to have more than one person share the role of caregiver. Reach out to your family, friends, religious organizations, and community support groups for help.
Your care team is here to support you and your caregiver throughout your treatment. Please talk with us about your concerns or questions. Our social workers can help you with possible caregiver support.
You can also visit msk.org/pe to search for educational resources, videos, and online programs.
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