Resources for People with Retinoblastoma

Many organizations offer information and services for cancer survivors who are blind or visually impaired. Learn more about these resources with this list, which was put together with support from the Leo Rosner Foundation.

Informational Resources

The following links can be gateways to information and services for the blind and visually impaired. They offer a wide range of resources, such as rehabilitation services and general education on living with blindness or visual impairment.

National Federation of the Blind
The National Federation of the Blind is a large membership organization of blind individuals.

American Foundation for the Blind
The American Foundation for the Blind is a national nonprofit that works to expand possibilities for the blind.

VISIONS
VISIONS is a nonprofit agency that works to increase the independence of blind and visually impaired people. It offers information about rehabilitation services, publications on self-help, and a recreational and rehabilitation camp for both children and adults.

Blindline
Blindline is a fully accessible website created by VISIONS in collaboration with the American Foundation for the Blind. It provides direct access to a New York State database of organizations and services for people who are blind or visually impaired as well as their family members, counselors, and other professionals.

Commission for the Blind and Visually Handicapped
The Commission for the Blind and Visually Handicapped is part of New York State’s Office of Children and Family Services. The organization offers a wide range of rehabilitation services to children and adults.

Lighthouse Guild
The Lighthouse organization is more than 100 years old and aims to be a worldwide leader in helping those who are blind or visually impaired overcome their challenges regarding vision loss.

Helen Keller Services for the Blind
Helen Keller Services for the Blind is more than 110 years old and offers many services, such as classes and workshops on rehabilitation, summer camps for children, and a large-print and braille library.

National Association of Parents of Children with Visual Impairments (NAPVI)
The National Association of Parents of Children with Visual Impairments (NAPVI), part of the Lighthouse Guild, is a nonprofit organization offering support to the parents of children who have visual impairments. NAPVI has many chapter groups across the nation, including one in the Bronx, New York.

Make-A-Wish
Make-A-Wish grants the wishes of children with life-threatening medical conditions.

Assistive Technology and Products

MaxiAids
MaxiAids offers many gadgets to aid independent living. Their products for the blind and visually impaired include canes, talking products (watches, clocks, scales, and personal organizers), magnifiers, and large-print products.

American Printing House for the Blind
The American Printing House for the Blind promotes the independence of blind and visually impaired individuals by offering specialized products and services needed for education and life.

Schools

New York City Department of Education’s Blind Student Assistance
A New York City Department of Education program called Educational Vision Services is available to blind and visually impaired students ages five to 21.

New York State School for the Blind
The New York State School for the Blind, located in western New York, provides programs and services at no cost to legally blind children between the ages of five and 21.

Lavelle School for the Blind
The Lavelle School for the Blind, located in the Bronx, New York, was founded more than 100 years ago and offers educational programs for blind students.

New York Institute for Special Education
The New York Institute for Special Education, located in the Bronx, New York, offers various programs for students with special needs, including one for blind and visually impaired children between the ages of five and 21.

Camps

For Cancer Survivors

MoRE Camp Adventure
MoRE Camp Adventure in eastern Long Island, New York, is a week-long sleep-away camp for children with cancer and their siblings, ages six to 18.

Camp Good Days
Camp Good Days, with various locations in upstate New York, offers many different programs for survivors of cancer.

Happiness Is Camping
Happiness Is Camping, located in the Bronx, New York, offers many summer camp sessions for children with cancer between the ages of six and 14.

Camp Rising Sun
Camp Rising Sun, located in Colebrook, Connecticut, offers a week-long camp for children with cancer between the ages of six and 18.

For the Blind or Visually Impaired

Camp Helen Keller (Helen Keller Services for the Blind)

Camp Helen Keller is a six-week summer day camp for blind or visually impaired children, ages four to 15.

Camp Wanaqua (New York Institute for Special Education)

Camp Wanaqua, located in New York City, is a summer camp for blind and visually impaired children, ages six to 13.

Libraries, Art, and Theater

Libraries

National Library Service for the Blind and Physically Handicapped
The National Library Service for the Blind and Physically Handicapped allows people to search for local libraries for the blind and visually impaired.

Andrew Heiskell Braille and Talking Book Library
The Andrew Heiskell Braille and Talking Book Library is a New York City public library for the blind and visually impaired.

New York State Talking Book and Braille Library
The New York State Talking Book and Braille Library, located in Albany, New York, lends braille and recorded books to residents in upstate New York.

Art

Art Beyond Sight
Art Beyond Sight provides information on art and museum education for the blind and visually impaired.

Theater

Theater by the Blind
Theater by the Blind is a critically acclaimed company made of both visually impaired and sighted individuals.

Learning Ally
Learning Ally offers many digitally recorded books for the blind. There are many national branches, including one in New York City.

Sports

United States Association of Blind Athletes
The United States Association of Blind Athletes aims to increase athletic opportunities for blind and visually impaired individuals.