Programa de Cáncer de Mama Raro
Reseña
De cada 100 personas con cáncer de mama, 5 casos son un subtipo raro. Debido a que hay tan pocos casos, solo algunos médicos tienen experiencia en el diagnóstico y tratamiento. Es importante elegir un equipo de atención con formación especializada en cáncer de mama raro.
El Programa de Cáncer de Mama Raro de MSK ofrece esa experiencia. Cada año, evaluamos y tratamos a unas 200 personas con cáncer de mama raro en estadio temprano o más avanzado.
Hemos creado todo un equipo de expertos para elaborar el mejor plan para usted. En su cita en MSK, también evaluaremos si tenemos un estudio de investigación adecuado para usted. Seremos su guía si desea participar de nuestra investigación, también conocida como un ensayo clínico.
Algunos tipos de cáncer de mama raro pueden ser causados por genes heredados, como los genes BRCA1 y BRCA2. Quizás algunos miembros de su familia que tienen parentesco consanguíneo con usted hayan sido diagnosticados con cáncer de mama. Si es así, usted y su familia pueden considerar hacerse un examen genético en MSK.
En algunos casos, los exámenes genéticos son la mejor forma de obtener información completa sobre un tumor de mama. MSK puede ayudarle.
Detalles del programa
MSK creó este programa para desarrollar mejores tratamientos para los casos de cáncer de mama raro. Obtendremos muestras del tumor a través de una biopsia o durante la cirugía. Luego, realizaremos pruebas en el tumor. Los resultados nos ayudarán a orientar su atención.
Cada tipo de cáncer de mama raro es diferente. Sin embargo, la mayoría de las pautas de tratamiento muchas veces se basan en los tipos de cáncer de mama más comunes. Las pruebas nos permitirán adaptar el tratamiento al tipo de cáncer que usted tenga.
El equipo del Programa de Cáncer de Mama Raro se asegurará de que reciba el mejor tratamiento. Estamos aquí para usted. Y para nuestros futuros pacientes, nuestra investigación está mejorando lo que sabemos sobre los tipos raros de cáncer de mama.
Nuestra promesa es compartir todo lo que sabemos e investigar lo que desconocemos.
¿Cuáles son los tipos de cáncer de mama raro?
Los casos de cáncer de mama raro no son comunes. Ocurren con menos frecuencia que los tipos más comunes, como el carcinoma ductal y el carcinoma lobulillar.
- Cáncer de mama metaplásico
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Metaplastic (meh-tuh-PLAS-tik) breast cancer is a rare type of invasive breast cancer. Invasive means it spread from where it started in the breast to nearby healthy tissue.
Invasive cancers can be more aggressive and grow fast.
Metaplastic breast cancers have some breast cells, as well as cells that do not come from the breast. It’s a mix of 2 or more types of breast cancer cells, usually carcinoma and sarcoma.
Metaplastic breast cancers most often are triple-negative. That means they do not have the estrogen, progesterone, or HER2 receptors that are common in other breast cancers.
- Cáncer de mama micropapilar (carcinoma micropapilar invasivo)
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Micropapillary breast cancer is also called invasive micropapillary carcinoma. It’s invasive breast cancer.
Invasive means it spread from where it started in the breast to nearby healthy tissue. Invasive cancers can be more aggressive and grow fast.
- Cáncer de mama neuroendocrino
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Neuroendocrine (NOOR-oh-EN-doh-krin) tumors in the breast can have a few forms.
The tumor can be an invasive breast cancer that acts more like a standard breast cancer.
It can be neuroendocrine carcinoma of the breast, a more aggressive cancer. To make a diagnosis, we look for neuroendocrine markers.
- Cáncer de mama adenoide quístico (carcinoma adenoide quístico)
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Adenoid cystic breast cancer is also called adenoid cystic carcinoma. It’s made up of abnormal (not normal) epithelial cells that invade the milk ducts. Epithelial cells are cells that line an organ.
Adenoid cystic tumors most often are triple-negative. That means they do not have the estrogen, progesterone, or HER2 receptors that are common in other breast cancers.
Adenoid cystic carcinomas generally grow slowly and respond well to treatment. However, there is a type that tends to be more aggressive, called the solid basaloid variant.
- Cáncer de mama tubular
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Tubular breast cancer is made up of tube-shaped cells. It starts in the milk ducts. Most often, it does not spread past the ducts and surrounding tissue. This cancer grows slowly. It has a better prognosis (treatment result) than other rare breast cancers.
- Cáncer secretor de mama
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Secretory breast cancer most often affects children and young adults, but it can happen at any age. The first symptom most often is a firm, painless lump. Another possible symptom is discharge from a nipple.
This cancer grows slowly. It responds well to treatment, even when it has spread to lymph nodes.
¿Cómo MSK brinda apoyo a las personas con algún tipo de cáncer de mama raro?
Usted es una persona con una vida más allá del cáncer, y queremos ayudarle a volver a ella. Por eso contamos con programas y servicios para brindarle apoyo a usted y a sus seres queridos, entre ellos:
- Exámenes genéticos y asesoramiento para ayudarle a determinar si tiene una mutación. Nuestros expertos pueden informarle cómo esto afecta su tratamiento y lo que significa para los miembros de su familia.
- Nuestro equipo especialista en alimentación y nutrición puede brindarle ayuda para mantener una alimentación saludable durante su tratamiento contra el cáncer de mama. Puede ayudarle a comer de una manera que reduzca su riesgo de padecer la enfermedad. Le ayudarán a entender y hacer frente a los desafíos nutricionales relacionados con el tratamiento contra el cáncer.
- El programa de Vida Saludable de MSK ofrece apoyo personal para ayudarle durante todo el tratamiento y la recuperación. Crearemos un plan de estilo de vida personalizado basado en sus necesidades e inquietudes.
- Contamos con un equipo de expertos que se especializa en el manejo de los síntomas y efectos secundarios del tratamiento contra el cáncer. Ofrecen métodos para ayudar a controlar las náuseas durante la quimioterapia.
- MSK cuenta con un programa para el tratamiento del linfedema, un tipo de hinchazón que puede ocurrir después del tratamiento contra el cáncer de mama.
Cancer affects your sex life in both physical and emotional ways. Our Female Sexual Medicine & Women’s Health Program can help with physical symptoms and emotional challenges that may affect your sex life. We can talk with you about physical changes that affect intimacy.
MSK has experts with special training in female sexual health and fertility. Perhaps you’re trying to have a child or think you may want to start a family someday. We can help you understand your options before and after treatment for having children.
Breast cancer and its treatment can affect your feelings about your body. Our surgery team has experts in breast surgery and all types of breast reconstruction. The first step is deciding what type of breast reconstruction is right for you. We also offer emotional support to help with anxiety and stress related to breast surgery.
Pain management is an important part of cancer care. MSK was the first cancer center in the country to have a service just for treating pain in people with cancer. Our pain experts will help relieve or manage pain after surgery. They can help while you’re still in the hospital, and after you’re home.
Our Integrative Medicine Service (also called complementary therapies) offers acupuncture, meditation, massage therapy, yoga, and exercise.
You may want support to cope with side effects of treatment. These may include pain, fatigue (feeling very tired), nerve problems, nausea, insomnia, and stress.
Without using prescription drugs, integrative therapies can help improve and control side effects of cancer treatment.
Integrative medicine services are available in New York City, New Jersey, Westchester, and on Long Island. We also offer virtual classes and workshops.
Cancer treatment can change how well your body moves.
Our Rehabilitation Medicine team guides you in recovering from the effects of treatment. Training with our physical, occupational, and exercise therapists can help bring your strength back. They can help with your breathing, speech problems, muscle strength, lymphedema (arm swelling), and many other issues after surgery.
We can work with you in our gyms at convenient locations closer to home. We have locations in Manhattan, New Jersey, Westchester County, and on Long Island. Your care team also can give you exercise programs to do at home.
We have many services to support you during breast cancer treatment. Our experts offer counseling and support to help you manage anxiety. We offer support groups and programs if you want to talk with other people going through a similar experience.
Social workers can offer information about how to talk about your diagnosis with family members, work colleagues, and friends. Our social workers can also help address your financial concerns.
Muchas personas con cáncer prefieren recibir tratamiento más cerca de su hogar. MSK ofrece atención oncológica de excelencia en Long Island y en varios centros del condado de Westchester, Nueva Jersey y la ciudad de Nueva York. Puede reunirse con su cirujano y recibir quimioterapia, radioterapia y hacerse un examen genético.
Preguntas comunes
Genetic testing is a type of medical test. It looks for changes (mutations or variants) in your genes. Testing can tell us which gene has a mutation that can cause a rare breast cancer.
Before testing, we’ll give you information about genetic testing. We’ll also ask for your written permission to do genetic testing.
Genetic testing involves checking the genes in a sample of blood or saliva (spit). We collect blood at an MSK location near you. We get a saliva sample through a saliva kit mailed to your home. The sample is sent to a testing lab. The genetic test result is available in a few weeks.
Cancer treatment can change how well your body moves.
Our Rehabilitation Medicine team guides you in recovering from the effects of treatment. Training with our physical, occupational, and exercise therapists can help bring your strength back.
They can help with your breathing, speech problems, muscle strength, lymphedema (arm swelling), and many other issues after surgery.
We can work with you in our gyms at convenient locations closer to home. We have locations in Manhattan, New Jersey, Westchester County, and on Long Island. Your care team also can give you exercise programs to do at home.
You and your loved ones face emotional and social challenges after learning you have cancer.
We offer counseling and support to help you manage anxiety, depression, anger, or loneliness. There are individual and group counseling sessions, both in person and through telemedicine visits. Counseling is open to you and your family, separately or together.
We also run support groups and programs if you want to talk with other people going through a similar experience. Our social workers can offer information about how to talk about your diagnosis with family members, work colleagues, and friends.
